I've found a new way to feel good about autism: spend a weekend thinking your son has not only autism, but also some weird myelin-depleting condition. Just plain autism sounds great to me now.
The doctor finally called and said, "Oh we see hypomyelination in lots of our kids [meaning patients with autism]. We don't refer them to neurologists, because there's nothing you can do". So whatever it is (she didn't explain it, and I was too relieved to formulate questions), it's not getting worse, and according to the doctor, could actually improve as he starts to use more parts of his brain. That doesn't sound very medical, but she said something along those lines.
Yikes, what a crazy situation. If only that staff member could have kept quiet! I'm sure she's in some kind of trouble now.
I feel as if my brain has turned to mush. My husband kept asking if I'd asked her this or that (for example, does B. have the same condition). I don't think I asked anything once I realized it wasn't anything progressive. I was thinking. "Yippee!" and wanting to get off the phone. She also told me that his bloodwork is normal, which was good to hear.
So now I'll spend a lovely afternoon enjoying my merely-autistic twins and their merely-articulation-challenged big brother. Ahhhhhh......