This is the worst weekend of my life. Yesterday someone from the developmental pediatrician's office called and said, "I forgot to tell the doctor that you called about the MRI results, but I'll tell you what it says."
I wasn't really processing what she was saying, but first she said "otherwise normal", and I just heard the word "normal" and started to relax. Then she said "I'm trying to look up this word...hypomyelination..." And she said "Don't tell anyone we had this discussion, I'm just clerical". Now I keep thinking I should have said, "Stop talking, let the doctor tell us!"
Anyway, the doctor had already left, and we just have this word "hypomyelination" to think about. Googling it led me to things like muscular dystrophy, so I'm trying to stay very, very busy, and pretend I've never heard the word.
But I don't know what to think. G. is the one who is saying words, and smiling at me, and pointing, and laughing at silly things. Could he just be missing some myelin, not losing it? And if the twins are identical, how could this be on G's MRI and not B's? Although a lot can happen after the egg splits.
It seems to cruel that G. would have autism and also some problem with his myelin. In my googling, I couldn't seem to find any benign myelin problems, but I did have to get off the internet at a certain point, just to save my remaining sanity.
We don't know how to page this doctor, but it just occurred to me that I have an email address. I'm going to try emailing.
To anyone who might be reading this, would you find a way to page the doctor if you were me? My husband has decided it must be something benign, and thinks we should wait for Monday.