This is the worst weekend of my life. Yesterday someone from the developmental pediatrician's office called and said, "I forgot to tell the doctor that you called about the MRI results, but I'll tell you what it says."
I wasn't really processing what she was saying, but first she said "otherwise normal", and I just heard the word "normal" and started to relax. Then she said "I'm trying to look up this word...hypomyelination..." And she said "Don't tell anyone we had this discussion, I'm just clerical". Now I keep thinking I should have said, "Stop talking, let the doctor tell us!"
Anyway, the doctor had already left, and we just have this word "hypomyelination" to think about. Googling it led me to things like muscular dystrophy, so I'm trying to stay very, very busy, and pretend I've never heard the word.
But I don't know what to think. G. is the one who is saying words, and smiling at me, and pointing, and laughing at silly things. Could he just be missing some myelin, not losing it? And if the twins are identical, how could this be on G's MRI and not B's? Although a lot can happen after the egg splits.
It seems to cruel that G. would have autism and also some problem with his myelin. In my googling, I couldn't seem to find any benign myelin problems, but I did have to get off the internet at a certain point, just to save my remaining sanity.
We don't know how to page this doctor, but it just occurred to me that I have an email address. I'm going to try emailing.
To anyone who might be reading this, would you find a way to page the doctor if you were me? My husband has decided it must be something benign, and thinks we should wait for Monday.
5 comments:
Oh my! I can't but help but think that this gal should not be keeping her job. I know you were really wanting to know the results but WOW she had no business giving you them. Particularly when she can't tell you what it truly means for G!
Either way you have every right to contact the doctor! At this point his office needs to give you some answers. Needless to say that when you contact him the "clerical gal" is a goner!
But that doesn't matter. You have been given information with no guidance to interpret it! He needs to provide that guidance! Many office also have an emergency number for the doctor on call over the weekend. Perhaps you can go that route as well?
I am so sorry for all this stress! I pray that everything comes out okay!
I agree with MWAM. That person on the phone was an idiot. I hope it turns out to be less frightening than it seems right now.
I would have to agree with you. First I would've done what you did, google and freak out. Then I would try to call/email the doctor in order to regain some sense of sanity, because my thoughts would be totally out of control. It would indeeed be a long weekend.
I wish I had answers to help you. Two days is a long time to wait. Hopefully your doctor replys back quickly through his/her email.
Kristin
That is horrible! She should have said, wait for the Dr. I am so sorry you have to go through this. Monday can not come soon enough!
Oh, what a terrible way to send you off on your weekend. I'm just seeing this post and hope that you were able to get in touch with the doctor even if via email. That woman should be fired. Hopefully, since the doctor hadn't called you specifically about the results that it is benign. I'm sorry you have to spend this stressful time. Thinking of you and hoping you get good news by tomorrow.
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